Today is National Rare Disease Day. On my Instagram stories I opened up a little more about my sister and her condition and asked if anyone had questions. I'm posting screenshots from some of those questions here on my blog. I hate she has this disease and I'm grateful for the ability to talk about it in order to bring awareness to this awful life ruining disease.
*I realized after that the picture of Addie was actually taken at Shawn's funeral. Different uncle that passed away just three weeks after uncle Eddie.
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